© Friends of John Day Charitable Trust

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Introduction

 

John Day has been struggling most of his life with a rare neuro-degenerative disease called Friedreich's Ataxia, or F.A.  This disease threatens his life as its crippling effects deteriorate motor function by distorting messages from the brain to the rest of the body.  The average life expectancy for someone with the disease is 35 years.
 

Currently, there is no known cure, and thus, the medical community cannot do anything for people with the disease.  Because of its rarity, the pharmaceutical companies have no financial motivation to conduct (much needed) research for a cure.  The medical community labels F.A. "incurable" -- but that misnomer is merely a temporary label.  It is only "incurable"...until we know how to cure it.

 

E-mail the Foundation

 

Like Scavenger Hunts?!

 

Join us for the U.B.O.R.A.K. Auto Rallye!
 

DATE: Saturday, September 7, 2019
            (1st Saturday after Labor Day every year)

TIME: Start anytime between 11 a.m. & 1 p.m.

           Dinner at 7 p.m. Results announced 9ish.

           The 7 p.m. finish time will be strictly enforced!

LOCATION: Terwilliger’s Lodge, 10530 Deerfield Road, 

                     Montgomery, OH  45242
 

COST: Adults - $50/person (Rookies $30)
            Children 7-12 years - $15 - Under 7 FREE


Your entry fee is tax deductible. It includes rallye, refreshments and dinner.

Mark your calendar. SHARE on social media using #uborak.

Registration Form:

 

Motto

 

TO SERVE,

TO STRIVE,

AND NOT TO YIELD!

Donations

 

​If you would like to make a donation, please click on the "Donations" link in the navigation bar or click the button below.

LINKS

 

Team FARA Races Across America
to Raise Money for FA

http://teamfara.blogspot.com/2010/01/raam-route.html

 

Team Brochure
http://rideataxia.org/Team.FARA.RAAM.Brochure.2010.pdf

 

Kyle Bryant's Ataxia Ride​
http://www.rideataxia.org/

​​Friends of

John Day​

​​​​Charitable Trust

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